There were some procedural differences between the bicuspid and tricuspid groups. ( I was much worse though). I had a ventricle septum defect patched up shortly after birth with no further follow up and a full recovery. Best for athletes like you to have a discussion with their doctor(s) and settle on a defined, mutually acceptable course of action about which sports activities are safe. While I no longer due very strenuous activities, I still play softball, golf, kayak, ski, and do play hockey every now and again. His favorite sports are football and baseball. I cant wait to be back, completely rested with my heart recharged, my passion for the work ahead purposeful and my joy at lifes pleasures high," the statement continued. My mom [and aunt] passed away [in their 60s from heart disease], and my dad had a heart attack when I was around 10 and he had a triple bypass, the actress told PEOPLE. Very often, follow-up CT scans and echocardiograms are needed every 6-12 months to keep track. Also is it possible to never need surgery to replace the valve and that the AR stays stable, or even goes away ? But, while doing my cardio stress test they discovered that I have a Bicuspid Aortic Valve. Thank you for taking the time to respond to everyones concern. On said it wont make a real difference, the other said oh yes, that was like a blockage, you will feel the difference. I will do whatever I can to make sure my mom is comfortable and has whatever she needs, she said. Down side: must take blood thinners to prevent blood clots from forming on mechanical valve. The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. And its always valuable to frame up discussion in terms of how much risk is acceptable. Sadly, most school/sports physical exam programs dont include echocardiogram.and the absence of a heart murmur in a child wouldnt preclude the diagnosis. Benefits: no blood thinning (with attendant risks) needed. No changes in regurgitation status (aortic regurgitation LVOT 19%); "The 1997 heart valve replacement was never meant to be permanent," stated Daniel Ketchell, a spokesman for Arnold. I would prefer not to stop. I had a Bentall with mechanical valve done in Feb 2017. I did run 1-2 times/week for a 1.5 months now, the situation is getting a little better but still I feel like a 80 years old. Am I crazy? Bicuspid aortic valve is a type of abnormality of the aortic valve. I dont believe there is any evidence that would help us know if some forms are safer than others. Sadly, we dont have a crystal ball, though to know what the future holds for any particular individual. He has mild AS and AR and is otherwise asymptomatic. May 10, 2010, 4:50 PM. Perhaps your primary care doctor or cardiologist could help you find another specialist in your area who could help with thatlook over all of the pertinent information and share an opinion about whats safe. In my practice, we often do such second opinions (about all sorts of issues) and I have found that athlete patients usually value the information that comes from such visits. And my wife is screaming at me every time I try to exercise :)). I was only diagnosed with BAV after a routine examination and only because my company has increased in size above a threshold at which all employees are supposed to be subjected to this examination (weird law in Belgium). My surgeon basically said, Lets get you back to living your life. Cardiologists always say take it easy. Obviously, mild to moderate would be somewhere in between. Can you clarify what may not be true please? Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. Perhaps the best course of action might be to start off very conservative with exercise, as you are doing, with periodic assessment of the aortic valve and aorta with echo and CT. You might then gradually increase the activity and monitor for any bad signs with the periodic echos and CTs. Log in, September 26, 2013 By Larry Creswell, MD 155 Comments. (Have you heard of the studies by Dr. Okay to wait? She said not until it gets to 5cm. Thanks for the infoI really appreciate what you,have to say. Thank you for your time Dr.! Ten years ago (2006), doctors said that there was a worsening of the BAV but still no need to have Aortic replacement. The echo in Jan asc aorta Diam 4.2 cm z-score 6.4. Anyway, it has slowed to 1 mm per year, and, via email, Dr. Dietz has suggested we may consider a switch to 300 mg Libersartan? I have also had a stress test, which showed no issues at all. During pregnancy. I see my cardiologist the end of May. Contact Editor. The various artificial valves are a little bit less efficient that the valve were born with. I think you understand the guidelines correctly. Pathology. I have been advised not to run any more marathons or half-marathons, but that I can still compete at up to 10km races. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. I dont know about the relative effectiveness of various ARBs used for this purpose. Tachcardaia beetwen echo due that doctor couldent see clearly. All rights reserved. I see Im not alone. Catch up on the years best movies, whether in theaters or now streaming at home. It is very informative. But if you have a bicuspid aortic valve, you only have two cusps. I do think that aspects of the martial arts are strength-related. Robbie Benson - Actor/Director - Bicuspid Aortic Valve. Less 100mmhg. "I am lucky to be here.". As I mentioned in previous comment my recovery is going great. It's the most common type of congenital heart disease (heart defect that's present at birth) and often goes unnoticed until later in life. Weve known the risks and my daughter has done well to avoid scrapping for the ball etc. If the valve is smaller than needed, there can be a limit to the ability of the heart to do extra workand that can show up as less speed. I have been factual with him and told him worst case scenario is he is done with both and have pushed him to see the positives of exploring other things to do. Im 52 years old and had surgery 2.5 years ago to repair an ascending aortic aneurysm (5.8 cm) and aortic tissue valve replacement. 2; Is that so, or can it be measured by the echocardiogram as well? Robin Williams - Aortic Valve Replacement & Mitral Valve Repair. James Cameron checks in from Pandora with a status report. Can you tell me what is to much, are push ups or pull ups heavy lifting, is 3 time per week 5 km running with 10-12 km/h pace to much? Most patients spend about a week in the hospital after operation and then are able to go home. My cardiologist has advised that while marathon running is out, shorter runs (up to 6-8 miles) and pilates are both fine for now. Context Bicuspid aortic valve is the most common congenital cardiac anomaly in the adult population. Valve replacement with either a tissue (bioprosthetic) valve or a mechanical valve is, by far, more common. Most people require treatment once symptoms develop. Theo Wargo/Getty. Would this have any affect on any of the results of the tests I have done (Echo, EKG, Chest Xray)? And judgment would be needed. I am followed every 2 years. Consult your doctor to see if there are any restrictions that would be specific to your case. I cant think like a nurse where hey is concerned. I know they really should get checked, and they will. You didnt mention your age, but obviously youd hope that whatever operation is performed.lasts a lifetime. Thank you so much for your clear explanations. My Dr is almost certain that these symptoms are caused by issues that are not cardiac related, and that with at the stage my BAVD is at, it would not produce symptoms. Im in Philly today but Im from Central NY. Celebrities with congenital heart disease Details Published: January 27 2016 . Bicuspid aortic valve can be found in 1% to 2% of the general population . I went through the regiment of meds that are prescribed post AFIB. These operations can sometimes enjoy the benefits of each of the operations you mentioned.and avoid done of the down sides. Sounds like youre on the right track with your upcoming visit with a specialist. November Cover Star Gal Gadot Is in a League of Her Own A First Look at Diana and Margaret Thatcher in The Crown Season Four Celebs Roast Trump in Rhyme for John Lithgows Trumpty Dumpty Book Brace Yourself for George Clooneys Apocalyptic Movie The Midnight Sky The Best Shows and Movies Streaming This October Inside Netflixs Latest Binge-able Escape, Emily in Paris The Crowns Young Stars on Prince Charles and Princess Di From the Archive: How Hollywood Sharks, Mafia Kingpins, and Cinematic Geniuses Shaped The Godfather Not a subscriber? If a large enough valve is implanted, there may be no noticeable impact on the ability of the heart to do extra work that comes with running (or any exercise). Not only the degree of aortic regurgitation, but also the degree of enlargement of the nearby aorta, should be taken into consideration when settling on limits for exercise. You could probably settle on a plan for return to exercise with your surgeon and cardiologist. You already have a cardiologist looking after you. Mild aortic valve disease without symptoms may only require frequent health checkups. Aortic valve replacement is recommended for nearly all patients with severe valve stenosis (valve opening less than 1.0 cm2), Aortic valve replacement is recommended for patients with severe valve regurgitation if there are symptoms due to the regurgitation (eg, shortness of breath with exertion) or evidence that the heart is suffering because of the regurgitation (enlargement of the left ventricle), Repair or replacement of the beginning portion of the aorta is recommended if there is enlargement of the aorta to greater than 5.0 cm. This is true at rest and may be even more so during exercise. is my lack of top end performance indicative of someone with BAV & aortic coarctation? Im afraid Ill end up like my Mom. No stenosis, no calcification. Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three. Yes, as the patient grows, so will the aorta.and eventually you get to the traditional >40 mm cutoff where activity restrictions are advised. Eventually I will need valve replacement. March 7, 2023, Rob Riley The value of CT/MRI comes when a millimeter or two makes a difference in treatment, restrictions, surgery, etc. Search Hospitals, Join 375,000+ Patientsat Our Facebook Page Click here, HeartValveSurgery.com 2785 Pacific Coast Hwy, #517 Torrance, CA 90505 Phone: (888) 725-4311, 2023 HeartValveSurgery.com. I get the fact that lifting excessively can cause a spike in blood pressure, but only under certain conditions (i.e. Before that, I had never seen a cardiologist ever. That is to say, I did up until two months ago. I am considered elite in my age division. March 15, 2023. I dont want to do any damage or compromise my homograft as the last surgery was a very difficult recovery. Questions about Bicuspid Aortic Valve!! Or, is it something that can wait until they get sports physicals in their teens? I had AVR 3 years and 4 months ago. My son was just told he made the varsity basketball team as a freshman. Also, again, no stenosis or regurgitation, 35 mm ascending aorta. There is a readable section related to BAV. I was disappointed [when I was diagnosed]. Here are stories of some celebrities with this condition: Not everyone who has a congenital heart defect knows about it, so its important to be vigilant about the health of your heart. Have you considered meeting with a heart surgeon to talk about the situation? Frankly Im worrying quite a bit about thisand I feel like its causing additional chest pain and shoulder pain. However, randomized, controlled trials have excluded bicuspid aortic valve (BAV), which is the most frequent congenital heart disease occurring in 1% to 2% of the total population and representing at least 25% of patients 80 years of age or older referred for aortic valve replacement. Thanks, We just dont know. He is now 15. Its not around incision, its mainly middle of left side. I have been feeling better than before the surgery and I feel with better condition on the trails. Rose underwent the procedure last week, and said he would be going home to rest for a couple of weeks before returning in March. Now Id like to know your opinion about physical performance, before and after. The important considerations in athletes with BAV are the degree of regurgitation of the valve and the degree of enlargement of the aorta. After an echo and an MRI with and without contrast, I found out that I have a BAV with mild aortic and pulmonic valve regurgitation. This is an area where second opinions may be helpful in sorting out whats safe. My heart rate some time is 100. Baton Rouge, Louisiana 70808. Often times, especially for patients with tissue heart valve replacement devices, the valve simply wears out. My questions are: can my root dilation remain stable? Aortic stenosis, the narrowing of the aortic valve. Its very helpful for people with heart problems. Currently complete in 5-a-side football and have done for life. The doctor said it wasnt serious, but that I should keep watch on it every year. Barbara Walters - Aortic Valve Replacement. After that, most patients can gradually return to activities that put stress on the sternum and upper extremities. California Governor and movie star of films including The Terminator and The Predator, Arnold Schwarzenegger marked the 10-year anniversary of his heart surgery at USCs Health Science Campus. I did cardio training 3 times a week and weight training twice a week for 60 years. Coarctation of the aorta is a narrowing that may produce an increase in the blood pressure in the upper extremities. My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. Seek different pediatric cardiologist/hospital (we have not seen a cardiologist yet)? Just double checking. There can be issues with aches and pains even months after operation that still relate to healing. A different set of. Hi, my name is Hector and I am 34 years old. Your sons cardiologist would seem to be in the best position to offer specific advice. This is the way I can help. Hello Dr. Creswell, I would like to get back into it, but obviously I have been having some concerns. I think we would expect less enlargement over time with stopping strenuous exercise. Thank you for your assistance in this matter. He left it pretty vague. The thing that keeps me sane is that I can jump on a treadmill or go play basketball for a few hours and feel relatively normal. The aortic root is moderately dilated (max 46mm sinus to opposite commissure but you can measure 48off axis). My consultant informed me that, because of my age, I would have a mechanical valve fitted which meant that I would be on warfarin for life and therefor not be able to play football. No enlargement of aorta or any other problems. Hey is almost looking forward to getting it fixed. Maybe you can help me with some questions. Im a 42 year old male and have been a highly competitive distance runner since high school. "Weve gotten a lot closer and weve learned each other on a whole different, deeper level, she told PEOPLE in 2015. what recommend me? Im not familiar with employment eligibility issues with BAV, even in this country. There are four valves of the heart, which are divided into two categories: Atrioventricular valves: The tricuspid valve and mitral (bicuspid) valve. An article at Endurance Corner about Normann Stadler, A blog post about elite triathletes and heart problems, Aortic stenosis and bicuspid aortic valve (BAV), http://www.athletesheart.org/wp-content/uploads/2013/12/Classification-of-Sports-300217.png, https://academic.oup.com/ejcts/article/50/3/400/2197426, If there is enlargement of the beginning portion of the aorta to greater than 4.0 cm, the individual should have a. Looking through the reader comments here at the blog and reflecting on the athlete inquiries Ive received, I thought Id cover some of the major issues. And he never had any symptoms and played competitive soccer since he was 6. "I have heart disease, and I found out about five or four years ago, the singer, now 49, told PEOPLE in 2008. However, my surgeon told me that he could fit a tissue valve and so would not need to be on warfarin. Abstract. But for those WITH such problems, we do recommend curtailing either static or dynamic activities, or both. The studies on Irbesartan for Marfans(I dont have Marfans) are showing some positive outcomes; and. Your surgeon will be in a good position to understand the exact details of operation that might be relevant when deciding whats safe.. Parenthetically, it may be time for an update. Dr. Larry, very helpful content. They are able to see my son this Friday, which i am much more comfortable with! My father has struggled with heart disease since he was 50, and I lost him [in 2008].. For those same patients, we recommending avoiding strenuous dynamic exercise line swimming, running, soccer, tennis, cross-country skiing, etc. Its a hard thing to describe to my cardiologist that my legs and HR are not cooperating when the pace picks up. Periodic re-evaluation with echocardiogram and/or CT scanning is used for most patients in this circumstance. Can you please shed some light on this is the sport performance supposed to gradually diminish (seems to go to zero for me) before the operation is needed? You can see my post above, from 26th of april. Just still unsure however if my bioprosthetic valve affects my cross country running times. Thank you very much for your answer. Finally, many patients are able to return to their sports after successful operation. Thanks! How severe are the problems? Semilunar valves: The pulmonary valve and aortic valve. He is very athletic. I have 6 years to go to retirement at the very least. 1. 1,3,4,15 It can lead to chronic heart failure and increase the risk of acute aor-tic syndromes and sudden cardiac death.15 Michelena et al16 studied 212 cases of asymp tomatic bicuspid . In April of this year (2016), I discovered I had a BAV in the worst manner possible. We have made the decision to stop playing high school soccer and will reevaluate in 6 months to determine about Spring team soccer (less intense). She was originally under the impression she felt the way she did simply because she was exhausted. Thank you for your time. The surgery involved a replacement heart valve made from a transplanted tissue sourced from his pulmonic valve. What are my chances of being able to go back to marathon running after surgery? I was hoping that if the ultrasound numbers dont change much, the endurance will not decrease significantly. My son was also complaining of shortness of breath with stairs mild and feels tired more easily. Anyway, talk to a surgeon who understands quality of life means. And my doctor do not give me responsive and exact answer to my questions regarding sports. Thats always the concern with new techniques with limited follow-up data. They may also disrupt the normal flow of blood through the heart. After a 6 month ramp up, will the Porcene valve take the stress of the 5 rep sets? I wouldnt put you in the position of giving me your opinion in a public in forum but just let me know if based on the following, you think Im crazy or not. Diagnosis was made because pulse dropped to 30 (normally 52), and pacemaker was thought to be needed (no symptoms other than low pulse for a few days). 3 In the most common type (type 1), there is a fusion line between the left and right coronary cusps, which extends a variable distance from the commissure (the point of attachment of the . I just want to know what things I will see change so that I dont look past the change in my valve and miss my window to get the valve replaced. Another possibility that you havent mentioned deserves some discussion with your sons doctor(s) or surgeon. The cardiologist told us at that appointment that we needed to start considering surgery to repair his valve. Im guessing that my muscles are building up again and since everything was messed up, especially on left side, maybe some scar tissue or damaged nerves are coming up. Approximately 1%-2% of the population are born with an aortic valve that only has two cusps. with valve area of 1.4 cm2 and aorta of 4.1 cms In your experience how long are we talking before I have to have surgery and do beta blockers really help in prolonging the need for surgery. I am 46 years old today, 22x marathoner, 4x Ultra (50 miles) and 5x natural fitness competitor. Perhaps other readers will comment. Bicuspid valve stenosis treatment involves surgery to replace the valve. 6 weeks later Im still experiencing symptoms that (in the back of my mind) have me thinking about the BV issue. A 2nd opinion might help by bringing another set of eyes and ears to your problem. There are several variations of this procedure that are applicable in specific situations. My biggest concern is whether I will be able to return to my previous level of physical activity and level of fitness. The lines are the edges of the valve leaflets that open and close to let blood through. Randyyour situation has many similarities to mine; I would be very interested in sharing experiences. I have repeatedly asked each follow up, if continued marathon training is OK. Im always told it is fine with the old adage of listening to your body. The other theory is that there is a structural problem that leaves the aortic wall weak. Aortic Stenosis "Thanks to the team at the Cleveland Clinic, I have a new aortic valve to go along with my new pulmonary valve from my last surgery," he wrote. no symptoms yet please help. I used to run a lot. Symptoms of bicuspid aortic valve disease most commonly develop in middle age in people with a history of a childhood heart murmur. I am a cycling Masters racer (Cat 2) for last 25 years . O'Donnell suffered a heart attack in 2012, and wrote about her experience on her blog. Jeff. Some cardiologists tell me that I can run up to 130 beats per minute ; others say theyd prefer I do power walking because pressure always rises while running. I had my BAV replaced in Feb. 2005 (porcine tissue) with a Dacron repair of the ascending aorta. Notify me of follow-up comments by email. Patients with BAV who have a normal size aorta, with no stenosis or regurgitation of the aortic valve, can participate in sports without restriction. The readers here would love to hear back from you as you work through this. I have found your article(s) very useful amongst what I see as so much mis-information out there. His doctor did not restrict him, but suggested that it may be time to give up the high-level play due to its high intensity training aspect (based on the Ordinarily, we reserve operation for patients with severe aortic regurgitation who have some decrement in the LV function. But Bob, you confirm that it does for you; and unfortunately I see same for me although 25 years younger. Finally some solid information about exercise and life post AVR, thank you very much for that. Data from these studies supported the U.S. Food and Drug Administration's approval of TAVR for low-risk individuals - replacing a narrowed aortic valve through a small incision in a procedure . I have normal aortic size, mildly dilated aortic sinus (39 cm), and trace aortic regurg. I had an echo because of a scuba diving accident and was discovered to have a BAV (no PFO). (Or do I just need to train even harder??). Your email address will not be published. He told me to carry on as normal and to take 300mg Irbesartan per day. We dont have a crystal ball, though. Kim Kardashian Doja Cat Iggy Azalea Anya Taylor-Joy Jamie Lee Curtis Natalie Portman Henry Cavill Millie Bobby Brown Tom Hiddleston Keanu Reeves. Ive yet to feel like Im back to my previous racing fitness that I once had. My personal approach to endurance athletes in this situation would be to offer operation if the patient wanted to continue to participate in endurance sports (after operation) and was willing to assume the risks of operation. A HR limit of 120 will be tough, I would guess. To revist this article, visit My Profile, then View saved stories. Did you run? A repaired valve may not be as efficient as the native, healthy valve. We see his pediatric cardiologist every 6 months. Bicuspid aortic valve refers to a spectrum of deformed aortic valves with two functional leaflets or cusps which are often unequal in size. Dr. Larry, thank you very much for your blog! Do you think the jiu-jitsu (e.g. I applaud your efforts to search out information to help you decide on a course of action. We dont know what to do. I will keep you posted. I have no proof this may be causing my less than stellar performance or if perhaps I should have more patience. I am wondering because I know that weighlifting with bav isnt so good I feel terrible because i lov weightlifting and I have build a body that is so difficult for a 18 years old. She advised us we should start to consider surgery but would follow up with us again in 3 months. In short, is it too early for me to start talking to a surgeon to identify available options? It was reported on April 5 that the 75-year-old Jagger underwent successful transcatheter aortic valve replacement (TAVR) at an undisclosed hospital in New . When there is narrowing (stenosis) or leakage (regurgitation) of the aortic valve, the heart must do extra work. Thanks for the enlightening article. Since Im very active in sports, Id like to have your opinion on it. Hamilton mother of twins, Cherie was diagnosed with bicuspid aortic valve disease (BAVD), a disease where the valve has only two leaflets. Be specific. Between one and two percent of all people have this defect, and it affects more men than women. He loves sports and is wanting to do more and more. When he was 7 we noticed his heart racing at age 11 his bicuspid aortic valve was diagnosed We have been told his valve is at the top of the normal size chart. I dont know anything about crossfit but I see his times are average on that page. Shes quite the athlete. On Monday the 13th, I had my annual echo. My question is if my weight&lack of training or my BAV is the cause of difficulty in running. Thank you very much for the answer! Although the vast majority in each group (97%) underwent TAVI via the transfemoral approach, bicuspid patients were less likely to receive conscious sedation (57% vs 62%) and more likely to be treated with the largest 29-mm valve size . I am now 60. What is your opinion about dissection in low/controlled messures? looking forward for healthy life without surgery any possibilities??? I was training for a marathon when I was 62 years old and diagnosed with BAV with severe regurgitation. Does the BAV with aortic dilatation and small leakage prevent the blood to flow less efficiently?
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